Of course everyone has fears especially of what the future holds for our lives and families. Usually, parents are able to plan out their child’s life based on how they lived theirs. In our case, that isn’t completely possible. We haven’t lived our lives through the eyes of ds, we also don’t know to what extent that extra chromosome has affected her.
My thoughts of ds before was always negative. I only went by what I had heard. The day those words came out of her drs mouth, my world felt as if it just shattered. I remember telling my mom, “it just hurts that she wont ever be independent!” boy was I wrong! After getting over the shock, I researched ds to the core. My oh my, did I start getting excited for my daughters future! Not only will she be independent, but she will live a life like any typical person.
My fears are fading more and more everyday when I read articles about the lives of kids with ds or talking to those families that have someone with the syndrome. But now I have a new fear.
Ryan and I have talked about adding more to our family in the future. (i love that expression he makes when i say i want to have 10. Lol! Its just a joke) Before my baby girl, my fear was having a baby with an extra chromosome or with one missing. Now, my fear is having a typical baby and not having that connection and love I have for Remi. Deep down, I’d rather just not find out and let Remi be our only. I have fallen so much in love with that extra chromosome. But time will tell and if God wants to bless us with a baby without that chromosome in the future, than we will say “thank you” to Him because He makes no mistakes. He knows what’s best! We have also decided that if our next one comes rocking that extra chromosome as well, we will be more than ok with that because my daughter has shown us not to be afraid. No matter what, our future lays in Gods hands and all we can do is take it day by day, just like with ds :))
I hope everyone that have kids love them unconditionally because with or without a disability, every child deserves to be loved and appreciated! God has chosen each parent for their child for a reason and its a blessing, which I’m sure you all know!