Yesterday, Remi had her ECI (early childhood intervention). What that means is, we sat in a room and had different specialist come in, evaluate Remi, && answer any questions we had. We had a geneticist, an occupational therapist, physical therapist, speech/feeding therapist, pediatrician, cardiologist, down syndrome specialist, a social worker, && finally someone from the Dallas guild of down syndrome that has a child with ds.
I will not explain every detail of that visit because it’ll be too much so I’ll try to generalize.
There is so much to be grateful to God for. Although He has chosen this road for us, He has not left our side. He shows it through our daughter’s accomplishments and her intelligence.
“she has a plan”. Those words replay over and over in my mind. At first I could not understand what this physical therapist was saying or meaning by this because I had been busy answering questions from the speech/feeding therapist but as she began to explain her reason for this statement, I got a bit teary eyed. Ds affects many things in a persons body, as I had mentioned in a past post, but the one thing ds is known for is having low muscle tone. Remi, here, has decided to prove that statistic wrong. She surprised that physical therapist(which has a 22yr old daughter with ds) by showing off her old and new tricks. As a young 22 yr old mother that was told my daughter would have so many problems including health problems, I could do nothing but get teary eyed with this therapist statement.
Remi does have a plan, a plan that God has set her in this life of ours for.
For all the other doctors, everything they said made my visit emotional. Their evaluations of Remi were all positive. She will actually not need any therapies at the moment because, thanks to God, my daughter is surpassing every challenge she was suppose to fail in. How could I not love God for showing me His word is more powerful then a doctors words. A doctor may have studied ds all his life but God says who and how it will affect.
I also received some strength through this ECI. I received compliments from every doctor that walked in that room. From ” you are one of the best mothers we have met” to “I love your determination” to my favorite one, “we can see you are madly in love with Remi!” Those words helped ease my doubts of how well of a mother I was for my Remi Jane.
After that visit. I know I made my mom proud. She sat next to me through out this entire visit listening to every detail of remi’s progress and how I am going beyond the limits to help my daughter surpass her capability but it’s because of her that I am who I am. My mother is a strong woman who taught me to be strong. I can weather the bad because of that woman && I can glorify my God through situations that aren’t so good because of how she is. She is my counselor and my shoulder through all of this and i was just telling her how I’m glad she taught me to never wallow in self pity but to stand up and be strong! I went through a lot after my daughters birth; having preeclmpsia, post-partum depression, being told of remis syndrome and dealing with personal issues but not once did I shake my fist at God because I have parents that taught me to love God and He will give us the strength we need. Motto of my life.
Where’s Ryan in all of this? Well you see, he must work really hard to allow me to be a great mother and therapist to the little girl that stole his heart so he’s hard at work, worried every time we go to the doctors. He calls at every possible moment to check on his little love. He’s the one who has taught her to giggle && smile because Remi adores her quality time with him. She loves her daddy and I love him so much for being there for both Remi and I.