Wow! My eyes have been completely opened!
I have wondered why people with DS have to push through life, harder than typical people. Well, my question has been answered! If we would put weights on a baby the same age as my daughter, they would have a tough time doing what my daughter has accomplished. You see, Remi has low muscle tone, making it twice as hard to do what typical babies can do with less effort, hence the fact that typical babies reach milestones quicker. Sometimes, people with DS have learning disabilities so they have to work extra hard as well to fit in the rake that is expected. It’s like trying to write or read while looking through a mirror.
My respect for the people with DS have raised even higher. They do all this extra work that we take for granted and yet 99% of the DS community are happy with their lives. They don’t sit in self pity and hate the fact that they have to work harder at life. Instead, they do it knowing that it’s a HUGE accomplishment for them.
Ryan & I will happily celebrate every little accomplishment Remi does and we will push her to exceed in life, pass what science says she can accomplish. I believe in God, not science. I am very proud of my daughter for keeping up with the “normal” milestones without an occupational therapist (finally getting one this month!) but I will not be mad at her for falling behind a bit, because if I had low muscle tone, I wouldn’t be as determined as my little one. I will be here to cheer her on and I will stand behind her and in front of her to protect and encourage her in life.