So as I explained in my 1st post, my daughter has DS. With this extra chromosome, she will go through extra challenges that most babies don’t have to work too hard for. She was sent to a physical therapist, occupational therapist, speech therapist, geneticist, && a cardiologist as a protocol of her DS. Her physical therapist was so intrigued with her strength that she was so happy to tell me, she really didn’t need it but because of her syndrome, they would do it once a week. Her occupational therapist is the one she surprised the most. She rolled over in front of him & he was speechless. She was only 1 month old :)) she will go for a re-evaluation when she’s 6 months meaning she didn’t need it at the moment! Her speech therapist couldn’t keep her eyes off of Remi, and needless to say, Remi passed all her test. No need for speech therapy either. We will see her when Remi is 6 months as well. Her three therapist carried Remi through out all the evaluations. They fell in love with her from the moment they met her. For one of our appointments there, everyone that worked there had heard about Remi & how she rolled and was passing every test, that they came out to the waiting room to see her. So many arms she was passed around to! Next was her geneticist & because she has no health issues, we will not see her until Remi is 6 months && there again, the nurse and receptionist asked to hold her! I finally thought, “ok, no more doctors for a while. Remi’s fine!”. Of course I get a phone call that next week from her pediatrician & geneticist! It broke my heart when they said Remi had a hole in her heart and she would have to see her cardiologist in Dallas. Terrified & anxious, my mom and I took Remi to get more test done with her cardiologist. We sit, wait, then we are taken in for an echo, I sit next to my daughter holding her hand and trying to keep her calm. We are taken to a room to wait for the doctor and I just didn’t know what to think. I went through the longest 10 minutes of my life waiting for the doctor when he comes in and says, “well, seems like her hole will close up. She has the hole that most newborns are born with. She is perfectly fine!” I didn’t know to cry from joy or jump but I did neither. I just sat there and looked at my daughter and thanked God for everything! And again, before we left, all the receptionist were in awe with her and wanted to hold her. Realize how she has attracted people. Seems as though she will be a social bug!
We are finally caught up to now. Remi can hold her head by herself when she is sat down, she can roll over, she can grab things and put it up to her mouth, she is trying hard to try and crawl(which I don’t like because she’s growing up to fast!) she will babble, laugh, && smile. She loves to laugh at her daddy’s singing & her uncle Tony’s weirdness. She babble to her grandma & grandpa & loves to stare at her grandpa. She loves spending time with her daddy. She will look for her aunt Anna when she hears her. Music is her most favorite pastime. She enjoys grabbing her puppies ears and most of all, she loves my hugs and my kisses! She is a truly happy baby and we love spending every moment possible with her!
This is how we see her. There is 1 baby born with DS for every 30,000 typical babies. In other words, we won the lottery 🙂 a meaning that my brother tony brought to my attention & there is no better way to explain it!